One of the things to be admired from sportsmen is how they use their status to help people in need. Most top tennis players, for instance, have their own foundation, which they use to, for the most part, help kids in various parts of the world.
However, the gestures that get to me the most are those that are completely spontaneous, coming from a desire to help someone in need within their own community, like the one Carlos Berlocq is doing right now to help a 15-year-old girl from his home town, Leila Etchepare.
Her case was brought to Charly’s attention and touched both him and his wife, Noel, triggering the need for them to do a little something in order to help Leila and her family.
Who is Leila
Leila Etchepare is a teenager from Chascomús, Argentina, who has been diagnosed with the Niemann-Pick type C, a rare and incurable disease that “causes severe, progressive neurological symptoms. It is a life-threatening condition that can affect infants, children and adults. NP-C is characterized by cellular accumulation of lipids, in particular unesterified cholesterol and glycosphingolipids, in many parts of the body including the brain, liver and spleen.”
To slow down the progression of the NP-C, Leila needs to take a medication imported from the UK at a daily cost of $1,800, something that, until a few days ago, her charity would not even cover.
In the end, the charity accepted to cover the costs of Leila’s treatment, but the needs are still present for the teenager and her family, as not everything is covered, and that is why her mother opened an account to collect funds so that those other pressing needs are also taken care of.
You may find more information about Leila in this article from Clarin (in Spanish).
An exhibition to raise funds for Leila
Charly and his wife, themselves parents of a little girl, were moved by Leila’s case and decided to use Charly’s name and status to help her and her family in this time of need.
To help raise funds to alleviate Leila and her family’s burden, Berlocq has organised an exhibition, which will take place on December 15, at 18:00 local, in San Isidro’s Club Náutico.
The final details, such as the identity of Charly’s opponent, are yet to be confirmed, but for those who will be present, there will be draws courtesy of Berlocq’s clothing sponsor, Fila, as well as many surprises. You can visit Charly’s page (in Spanish) to learn more about the exhibition and find out how you can help Leila and her family if, like me, you cannot be present at the exhibition.
A generous and spontaneous way to give back to the community by the Berlocqs, and we hope that the event will have a great turn-up from the public in this Holiday season. The more support Leila gets, the better, and I send my best wishes to her and her family.